We had another appointment for Brooklyn today, and based on our visit I am changing my attitude of hoping for quick answers to lifes problems to being more patient. This is certainly just "one of those things that take time " to figure out.
Step 1.... Find out what the problem is and get a diagnosis.....Check!
Step 2...Find a treatment plan that actually works..... WOrking on it
Eosinophilic Diseases are different in each person, thus it can take a while to figure out the right combination for a treatment plan. With Brooklyn her major problem at first was her constant pain- we started a daily steroid that she swallows to coat her throat and stomach (2 X a day) to reduce the inflamation..she started to feel betterbut then started loosing weight. Since she has lost another lb in the last month, we are now supplementing her diet with elemental formula drinks filled with fat and calories. She will drink these until she gets up to the point that she can replace her regular diet with JUST the drinks. They don't taste great and she is a trooper with drinking as much as she can. WE are also adding more medicines for another month and upping her steroid to 3 X a day. The doctor says she can eat Potato chips all day (and drinks) and it doesn't matter- our ONLY goal this next month is to get her to GAIN WEIGHT!
Eventually we will find a combination that works. The Great news is...She is a happy girl! She doesn't complain of pain often anymore and loves to run, jump, and in general have a good time. She got her cast off and although her bone is fragile it is healing well.
1 comment:
That girl deserves a medal.... poor thing! I am so glad she's not in pain.
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